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{{Disability}}
{{MOS|date=December 2024}}
"The '''normalization''' principle means making available to all [[people with disabilities]] patterns of life and conditions of everyday living which are as close as possible to the regular circumstances and ways of life or society."<ref>''The basis and logic of the normalisatioprinciple'', Bengt Nirje, Sixth International Congress of IASSMD, Toronto, 1982</ref> Normalization is a rigorous theory of [[human services]] that can be applied to disability services.<ref>Wolfensberger, W. & Glenn, L. (1973). "Program Analysis of Service Systems (PASS): A Method for the Quantitative Evaluation of Human Services". Vol. 1. Handbook. Volume II. Field Manual. Downsview, Toronto, Canada: National Institute on Mental Retardation.</ref> Normalization theory arose in the early 1970s, towards the end of the [[Involuntary commitment|institutionalisation]] period in the US; it is one of the strongest and long lasting integration theories for people with severe disabilities.
==Definition==
Normalization involves the acceptance of some people with disabilities, with their disabilities, offering them the same conditions as are offered to other citizens. It involves an awareness of the normal rhythm of life – including the normal rhythm of a day, a week, a year, and the life-cycle itself (e.g., celebration of holidays; workday and weekends). It involves the normal conditions of life – housing, schooling, employment, exercise, recreation and [[freedom of choice]] previously denied to individuals with severe, profound, or significant disabilities.<ref>Nirje, Bengt as cited in S. Cohen & C. Gothelf. (1988). A Preservice Trining Curriculum for Administrators for Community-Based Residential Programs Service People with Developmental Disabilities. NY, NY: City University of New York, Hunter College.</ref>
[[Wolf Wolfensberger]]'s definition is based on a concept of [[Social norm|cultural normativeness]]: "Utilization of a means which are as culturally normative as possible, in order to establish and/or maintain personal behaviors and characteristics that are as culturally normative as possible." Thus, for example, "medical procedures" such as [[Shock therapy (psychiatry)|shock treatment]] or restraints
===Theoretical foundations===
This theory includes "the [[dignity of risk]]", rather than an emphasis on "protection"<ref>''Misconceptions on the principle of normalisation'', Bank-Mikkelsen, Address to IASSMD Conference, Washington, D.C., 1976.</ref> and is based upon the concept of integration in community life. The theory is one of the first to examine comprehensively both the individual and the service systems, similar to theories of [[human ecology]] which were competitive in the same period.
The theory undergirds the [[deinstitutionalisation|deinstitutionalization]] and community integration movements, and forms the legal basis for affirming rights to [[Right to education|education]], [[Right to work|work]], community living, medical care and [[citizenship]]. In addition, [[self-determination]] theory could not develop without this conceptual academic base to build upon and critique.<ref>Allard, M., Howard, A., Vorderer, L. & Wells, A. (1999). "Ahead of His Time: Selected Speeches of Gunnar Dybwad." Washington, DC: American Association on Mental Retardation.</ref>
The theory of [[social role valorization]] is closely related to the principle of normalization<ref>Nirje, B. (1985). The basis and logic of the normalization principle. ''Australian and New Zealand Journal of Developmental Disabilities'', 11(2): 65-68.</ref> having been developed with normalization as a foundation.<ref>Wolfensberger, W. (1983). Social role valorization: A proposed new term for the principle of normalization. ''Mental Retardation, 21'', 234-9.</ref> This theory retains most aspects of normalization concentrating on socially valued roles and means, in socially valued contexts to achieve integration and other core [[quality of life]] values.{{citation needed|date=December 2023}}
== History ==
The principle of normalization was developed in [[Scandinavia]] during the
===Academe===
The principle was developed and taught at the university level and in field education during the
===Significance in structuring service systems===
Normalization has had a significant effect on the way services for people with disabilities have been structured throughout the UK, Europe,
Government reports began from the 1970s to reflect this changing view of disability (Wolfensberger uses the term devalued people), e.g. the NSW Anti-Discrimination Board report of 1981 made recommendations on "the rights of people with intellectual handicaps to receive appropriate services, to assert their rights to [[independent living]] so far as this is possible, and to pursue the principle of normalization." The New York State Quality of Care Commission also recommended education based upon principles of normalization and social role valorization addressing "deep-seated negative beliefs of and about people with disabilities".<ref>Cashen, J. (1989, Nov-Dec). The need for value-enhancement training and informal support systems. ''Quality of Care'', Issue 42: 1-3.</ref> Wolfensberger's work was part of a major systems reform in the US and Europe of how individuals with disabilities would be served, resulting in the growth in community services in support of homes, families and community living.<ref>Flynn, R.J. & Nitsch, K.E. (1980). ''Normalization, Social Integration and Community Services''. (pp. 117-129). Baltimore, MD; Paul H. Brookes.</ref><ref>Taylor, S. Bogdan, R. & Racino, J. (1991). ''Life in the Community: Case Studies of Organizations Supporting People with Disabilities''. Baltimore, MD: Paul H. Brookes.</ref>
===Critical ideology of human services===
Normalization is often described in articles and education texts that reflect deinstitutionalization, family care or community living as the ideology of human services.<ref>Landesman, S. & Butterfield, E. (1987, August). Normalization and deinstitutionalization of mentally retarded individuals: Controversy and facts. "American Psychologist", 42: 809-816.</ref><ref>Bruininks, R.H. & Lakin, K.C. (1985). Living and Learning in the Least Restrictive Environment". Baltimore, MD: Paul H. Brookes</ref> Its roots are European-American, and as discussed in education fields in the 1990s, reflect a traditional gender relationship-position (Racino, 2000), among similar diversity critiques of the period (i.e., [[multiculturalism]]).<ref>Racino, J. (2000). "Personnel Preparation in Disability: Toward Universal Approaches to Support". Binghamton, NY: Charles C. Thomas Publishers.</ref> Normalization has undergone extensive reviews and critiques, thus increasing its stature through the decades often equating it with school mainstreaming, life success and normalization, and deinstitutionalization.<ref>Zipperlin, H. (1975). Normalization. In: J. Wortis (Ed.), "Mental Retardation and Developmental Disabilities, VII". NY, NY: Brumer Mazel Publishers.</ref><ref>Chappell, A. (1992). Towards a sociological critique of normalisation principle. "Disability, Handicap and Society", 7(1): 35-51.</ref><ref>Lippman, L. (1977). "Normalization" and related concepts: Words and ambiguities. ''Child Welfare'', 56(5): 301-310.</ref><ref>Phillips, M.J. (1992). "Try Harder": The experience of disability and dilemmas of normalization. aina; ap. Ferguson, D. Ferguson, & S. Taylor (Eds), ''Interpreting Disability: A Qualitative Reader''. NY & London: Teachers College, Columbia University.</ref>
==In contemporary society==
{{essay|section|date=April 2015}}
In the United States, large public institutions housing adults with developmental disabilities began to be phased out as a primary means of delivering services in the early 1970s and the statistics have been documented until the present day (2015) by David Braddock and his colleagues.<ref>Braddock, D., Hemp, R., Fujiura, G., Bachelder, L., & Mitchell, D. (1990). "The State of the States in Developmental Disabilities". Baltimore, MD: Paul H. Brookes.</ref> As early as the late 1960s, the normalization principle was described to change the pattern of residential services, as exposes occurred in the US and reform initiatives began in Europe. These proposed changes were described in the leading text by the [[President's Committee on Mental Retardation]] (PCMR) titled: "Changing Patterns in Residential Services for the Mentally Retarded" with leaders [[Burton Blatt]], [[Wolf Wolfensberger]], [[Bengt Nirje]], [[Bank-Mikkelson]], [[Jack Tizard]], [[Seymour Sarason]], [[Gunnar Dybwad]], [[Karl Gruenwald]], [[Robert Kugel]], and lesser known colleagues [[Earl Butterfield]], [[Robert E. Cooke]], [[David Norris (physician)|David Norris]], [[H. Michael Klaber]], and [[Lloyd Dunn]].<ref>Kugel, R.H. & Wolfensberger, W. (1969). Changing Patterns in Residential Services for the Mentally Retarded." Washington, DC: President's Committee on Mental Retardation"</ref>
===Deinstitutionalization and community development===
The impetus for this mass deinstitutionalization was typically complaints of systematic abuse of the patients by staff and others responsible for the care and treatment of this traditionally vulnerable population with media and political exposes and hearings.<ref>Blatt, B. & Kaplan, F. (1974). "Christmas in Purgatory: A Photographic Essay on Mental Retardation". Syracuse, NY: Human Policy Press.</ref> These complaints, accompanied by judicial oversight and legislative reform, resulted in major changes in the education of personnel and the development of principles for conversion models from institutions to communities, known later as the community paradigms.<ref>Racino, J. (1999). Policy, Program Evaluation and Research in Disability: Community Support For All". London: Haworth Press.</ref><ref>Blatt, B., Bogdan, R., Biklen, D. & Taylor, S. (1977). From institution to community - A conversion model - Educational programming for the severely/profoundly handicapped. In: E. Sontag, J. Smith, & N. Certo (Eds)., "Educational Programming for the Severely and Profoundly Handicapped" (pp. 40-52). Reston, VA: Council for Exceptional Children.</ref> In many states the recent process of deinstitutionalization has taken 10–15 years due to a lack of community supports in place to assist individuals in achieving the greatest degree of independence and community integration as possible. Yet, many early recommendations from 1969 still hold, such as financial aid to keep children at home, establishment of [[foster care]] services, leisure and recreation, and opportunities for adults to leave home and attain employment (Bank-Mikkelsen, p. 234-236, in Kugel & Wolfensberger, 1969).<ref>Bank-Mikkelsen, N. (1969). Ch. 10: A metropolitan area in Denmark, Copenhagen. In: R.B. Kugel & W. Wolfensberger, ''Changing Patterns of Residential Services for the Mentally Retarded'' (now Intellectual and Developmental Disabilities, 2015). Washington, DC: President's Committee on Mental Retardation.</ref>
===Community supports and community integration===
A significant obstacle in developing community supports has been ignorance and resistance on the part of "typically developed" community members who have been taught by contemporary culture that
===Contemporary services and workforces===
In 2015, public views and attitudes continue to be critical both because personnel are sought from the broader society for fields such as mental health<ref>Anthony, W., Cohen, M., Farkas, M. & Gagne, C. (2002). "Psychiatric Rehabilitation". Boston, MA: Boston University, Center for Psychiatric Rehabilitation.</ref> and contemporary community services continue to include models such as the international "emblem of the group home" for individuals with significant disabilities moving to the community.<ref>Johnson, K. & Traustadottir, R. (2005). "Deinstitutionalization and People with Intellectual Disabilities". London: Jessica Kingsley Publishers.</ref> Today, the US [[Direct support professional|direct support workforce]], associated with the [[University of Minnesota]], School of Education, Institute on [[Community Integration]]<ref>Larson, S., Sedlezky, L., & Hewitt, A. & Blakeway, C. (2012/14). US direct support workforce. In: J. Racino, ''Public Administration and Disability: Community Services Administration in the US''. NY, NY: CRC Press, Francis and Taylor.</ref> can trace its roots to a normalization base which reflected their own education and training at the next generation levels.
People with disabilities are not to be viewed as sick, ill, abnormal, subhuman, or unformed, but as people who require significant supports in certain (but not all) areas of their life from daily routines in the home to participation in local community life.<ref>Walker, P. & Rogan, P. (2007). "Making the Day Matter: Promoting Typical Lifestyles for Adults with Disabilities". Baltimore, MD: Paul H. Brookes.</ref> With this comes an understanding that all people require supports at certain times or in certain areas of their life, but that most people acquire these supports informally or through [[socially acceptable]] avenues. The key issue of support typically comes down to [[productivity]] and [[self-sufficiency]], two values that are central to
=== Contemporary
During the mid to late 20th century, people with disabilities were met with fear, [[Social stigma|stigma]], and pity. Their opportunities for a full productive life were minimal at best and often emphasis was placed more on personal
Bogdan and Taylor's (1993)
===Personal wounds, quality of life and social role valorization===
However, the perspective of Wolfensberger, who served as associated faculty with the
===Related theories and development===
Related theories on integration in the subsequent decades have been termed [[community integration]], self-determination or empowerment theory, support and empowerment paradigms, community building, functional-competency, family support, often not independent living (supportive living), and in 2015, the principle of [[Inclusion (disability rights)|inclusion]] which also has roots in service fields in the 1980s.
== Misconceptions ==
Normalization is so common in the fields of disability, especially [[Intellectual disability|intellectual]] and [[Developmental disability|developmental]] disabilities, that articles will critique normalization without ever referencing one of three international leaders: Wolfensberger, Nirje, and Bank Mikkelson or any of the women educators (e.g., Wolfensberger's Susan Thomas; Syracuse University colleagues Taylor, Biklen or Bogdan; established women academics (e.g., Sari Biklen); or emerging women academics, Traustadottir, Shoultz or Racino in national research and education centers (e.g., Hillyer, 1993).<ref>Hillyer, B. (1993). ''Feminism and Disability''. Norman, OK: University of Oklahoma.</ref> In particular, this may be because Racino (with Taylor) leads an international field on [[community integration
* a) '''Normalization does not mean making people normal – forcing them to conform to societal norms'''.
Wolfensberger
Normalization is very complex theoretically, and
* b) '''Normalization does not support "dumping" people into the community or into schools without support'''.
Normalization has been blamed for the closure of services (such as institutions) leading to a lack of support for children and adults with disabilities. Indeed, normalization personnel are often affiliated with [[human rights]] groups. Normalization is not equivalent to deinstitutionalization, though institutions have been found to not "pass" in service evaluations and to be the subject of exposes. Normalization was described early as alternative [[special education]] by leaders of the deinstitutionalization movement.<ref>Wolfensberger, W. (1977). The principle of normalization. In: B. Blatt, D. Biklen, & R. Bogdan, "An Alternative Textbook in Special Education: People, Schools and Other Institutions". Denver, CO: Love Publishing Co.</ref>
However, support services which facilitate normal life opportunities for people with disabilities – such as special education services, housing support, employment support and advocacy – are not incompatible with normalization, although some particular services (such as special schools) may actually detract from rather than enhance normal living bearing in mind the concept of normal 'rhythms' of life.{{Citation needed|date=June 2010}}
* c) '''Normalization supports [[community integration]], but the principles vary significantly on matters such as gender and disability with community integration directly tackling services in the context of race, ethnicity, class, income and gender'''.
Some misconceptions and confusions about normalization are removed by understanding a context for this principle. There has been a general belief that 'special' people are best served if society keeps them apart, puts them together with 'their own kind, and keep them occupied. The principle of normalization is intended to refute this idea, rather than to deal with subtlety around the question of 'what is normal?' The principle of normalization is congruent in many of its features with "
* d) '''Normalization supports adult services by age range, not "mental age", and appropriate services across the lifespan'''.
Arguments about [[choice]] and [[individuality]], in connection with normalization, should also take into account whether society, perhaps through paid support staff, has encouraged them into certain behaviours. For example, in referring to normalization, a discussion about an adult's choice to carry a doll with them must be influenced by a recognition that they have previously been encouraged in childish or self-[[Infantilization|infantilizing]] behaviours, and that society currently expects them to behave childishly. Most people who find normalization to be a useful principle would hope to find a middle way - in this case, an adult's interest in dolls being valued, but with them being actively encouraged to express it in an [[Age appropriateness|age-appropriate]] way (e.g., viewing museums and doll collections), with awareness of gender in toy selection (e.g., see cars and motorsports), and discouraged from behaving childishly and thus accorded the rights and routines only of a "perpetual child". However, the principle of normalization is intended also to refer to the means by which a person is supported, so that (in this example) any encouragement or discouragement offered in a patronising or directive manner is itself seen to be inappropriate.{{Citation needed|date=June 2010}}
* e) '''Normalization is a set of values, and early on (1970s) was validated through quantitative measures (PASS, PASSING)'''.
Normalization principles were designed to be measured and ranked on all aspects through the development of measures related to homes, facilities, programs, ___location (i.e. community development), service activities, and life routines, among others. These service evaluations have been used for training community services personnel, both in institutions and in the community.<ref>Wolfensberger, W. & Glenn, L. (1975). ""PASS 3: A Method for Quantitative Evaluation of the Human Services Field. Toronto, Canada: National Institute on Mental Retardation"".</ref><ref>Wolfensberger, W. & Thomas, S. (1983). ""PASSING: Program Analysis of Service Systems Implementation of Normalization Goals"". Toronto, Canada: National Institute on Mental Retardation.</ref><ref>Flynn, R.J. & Heal, L.W. (1981). A short form of PASS 3: A study of its structure, interrater reliability, and validity for assessing normalization. ""Evaluation Review"", 5(3): 357-376.</ref><ref>Demaine, G.C., Silverstein, A.B. & Mayeda, T. (1980, June). Validation of PASS 3: A first step in service evaluation through environmental assessments. ''Mental Retardation'', 18: 131-134.</ref>
Normalization as the basis for education of community personnel in
==References==
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==Further reading==
* "The Principle of Normalization: History and Experiences in Scandinavian Countries," Kent Ericsson. Presentation ILSMH Congress, Hamburg 1985.
* "Setting the record straight: a critique of some frequent misconceptions of the normalization principle", Perrin, B. & Nirje, B., ''Australia and New Zealand Journal of Developmental Disabilities'', 1985, Vol 11, No. 2,
* A comprehensive review of research conducted with the program evaluation instruments PASS and PASSING. (1999). In: R. Flynn & R. LeMay, "A Quarter Century of Normalization and Social Role Valorization: Evolution and Impact". (pp. 317–349). Ottawa, Canada: University of Ottawa Press.
* The social origins of normalisation by Simon Whitehead in the reader Normalisation from Europe by Hillary Brown and Helen Smith (1992, Routledge). Foreword by Linda Ward. Reader includes references to Wolfensberger, John O'Brien (Citizen advocacy, Frameworks for accomplishment), Syracuse University Training Institute (European PASS workshops), Australian Training and Evaluation for Change Association, and Great Britain's Community and Mental Handicap Educational and Research Associates, among others.
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===Syllabi: course readings===
* Wolfensberger, W. (1979). "Readings for Universal Issues and Principles in Human Services". (pp. 1–6). Syracuse, NY: Training Institute for Human Service Planning, Leadership and Change Agentry.
* Wolfensberger, W. (1979). ''Overheads on PASS, Integration and Normalization''. Syracuse, NY: [[Syracuse University
===Assessment reports===
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* Nirje, B. (1969). Chapter 7: The normalisation principle and its human management implications. Kugel, R. & Wolfensberger, W. (Eds.), ''Changing Patterns in Residential Services for the Mentally Retarded''. Washington, DC: President's Committee on Mental Retardation.
* Nirje, B. (1970). The Normalization Principle: Implications and comments. Symposium on "Normalization. ''Midland Society for the Study of Abnormality'', 16(62-70).
* Wolfensberger, W. (1970). The principle of normalization and its implications to psychiatric services. ''American Journal of Psychiatry'', 127:3,
* Wolfesnberger, W. (1973). The future of residential services for the mentally retarded. ''Journal of Clinical Child Psychology'', 2(1):
* Wolfensberger, W. (1975). ''The Origin and Nature of Our Institutional Models''. Syracuse, NY: Human Policy Press.
* Wolfensberger, W. (1976). Will there always be an institution? The impact of epidemiological trends. (pp. 399–414). In: M. Rosen, G.R. Clark, & M.S. Hivitz, ''The History of Mental Retardation: Collected Papers: Volume 2''. Baltimore, MD: Paul H. Brookes.
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* Wolfensberger, W. (1988). [http://psycnet.apa.org/psycinfo/1988-26937-001 Common assets of mentally retarded people that are commonly not acknowledged.] ''Mental Retardation'', 26(2): 63–70.
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[[Category:Disability rights]]
[[Category:Majority–minority relations]]
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