CARE Principles for Indigenous Data Governance: Difference between revisions

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{{Short description|Principles created to advance data rights}}

{{confusing|date=March 2023|reason=there needs to be a simple introduction to provide some context. Who created these principles? Are they a law? Are they a code of conduct? Who are they aimed at?}}

The '''CARE Principles for Indigenous Data Governance''' were created to advance the legal principles underlying collective and individual data rights in the context of the [[United Nations Declaration on the Rights of Indigenous Peoples Act (Canada)|United Nations Declaration on the Rights of Indigenous Peoples (UNDRIP)]].<ref>{{Cite web|title=United Nations Declaration on the Rights of Indigenous Peoples {{!}} United Nations For Indigenous Peoples|url=https://www.un.org/development/desa/indigenouspeoples/declaration-on-the-rights-of-indigenous-peoples.html|access-date=2021-09-16|website=www.un.org}}</ref> CARE was created by the International Indigenous Data Sovereignty Interest Group, a group that is a part of the [[Research Data Alliance]].<ref>{{cite journal |last1=Carroll, Stephanie Russo; Garba, Ibrahim; Figueroa-Rodríguez, Oscar L.; Holbrook, Jarita; Lovett, Raymond; Materechera, Simeon; Parsons, Mark; Raseroka, Kay; Rodriguez-Lonebear, Desi; Rowe, Robyn; Sara, Rodrigo; Walker, Jennifer D.; Anderson, Jane; Hudson, Maui |title=The CARE Principles for Indigenous Data Governance |journal=Data Science Journal |year=2020 |volume=19 |doi=10.5334/dsj-2020-043 |s2cid=228468384 |doi-access=free }}</ref>

The '''CARE Principles for Indigenous Data Governance''' are a set of principles intended to guide [[open data]] projects in engaging [[Indigenous Peoples]] rights and interests. CARE was created in 2019 by the International Indigenous Data Sovereignty Interest Group, a group that is a part of the [[Research Data Alliance]].<ref name="care">{{cite journal |last1=Carroll, Stephanie Russo; Garba, Ibrahim; Figueroa-Rodríguez, Oscar L.; Holbrook, Jarita; Lovett, Raymond; Materechera, Simeon; Parsons, Mark; Raseroka, Kay; Rodriguez-Lonebear, Desi; Rowe, Robyn; Sara, Rodrigo; Walker, Jennifer D.; Anderson, Jane; Hudson, Maui |title=The CARE Principles for Indigenous Data Governance |journal=Data Science Journal |year=2020 |volume=19 |doi=10.5334/dsj-2020-043 |s2cid=228468384 |doi-access=free |hdl=1885/311806 |hdl-access=free }}</ref> It outlines collective rights related to open data in the context of the [[United Nations Declaration on the Rights of Indigenous Peoples]] and Indigenous [[data sovereignty]]. <ref name="nature">{{cite journal |last1=Carroll |first1=Stephanie Russo |last2=Herczog |first2=Edit |last3=Hudson |first3=Maui |last4=Russell |first4=Keith |last5=Stall |first5=Shelley |title=Operationalizing the CARE and FAIR Principles for Indigenous data futures |journal=Scientific Data |date=16 April 2021 |volume=8 |issue=1 |pages=108 |doi=10.1038/s41597-021-00892-0 |pmid=33863927 |pmc=8052430 |bibcode=2021NatSD...8..108C }}</ref>

CARE is an acronym which stands for '''C'''ollective Benefit, '''A'''uthority to Control, '''R'''esponsibility, '''E'''thics.<ref>{{Cite web|date=2021-08-27|title=CARE Principles of Indigenous Data Governance — Global Indigenous Data Alliance|url=https://www.gida-global.org/care|access-date=2021-09-16|archive-url=https://web.archive.org/web/20210827235045/https://www.gida-global.org/care|archive-date=2021-08-27}}</ref>

While CARE canis bean consideredacronym partwhich ofstands thefor open data'''C'''ollective movementBenefit, it aims'''A'''uthority to build on other standards such as [[FAIR data|FAIR]] (findableControl, accessible'''R'''esponsibility, interoperable, reusable) by considering power differentials and historical contexts'''E'''thics. The CARE Principles for Indigenous Data Governance are 'people and purpose-oriented, reflecting the crucial role of data in advancing Indigenous innovation and [[self-determination]]', and intended as a complement to the data-oriented perspective of other standards such as [[FAIR data]] (findable, accessible, interoperable, reusable).<ref name="gida">{{Cite web|date=2021-0908-1627|title=WhoCARE WePrinciples Areof Indigenous Data Governance — Global Indigenous Data Alliance|url=https://www.gida-global.org/whowearecare|access-date=2021-09-16|archive-url=https://web.archive.org/web/2021091604121620210827235045/https://www.gida-global.org/whowearecare|archive-date=2021-0908-1627}}</ref>

The CARE principles have been embedded into the Beta version of Standardised Data on Initiatives (STARDIT).<ref name="stardit">{{Cite journal|title=Standardised Data on Initiatives – STARDIT: Beta Version|doi=10.31219/osf.io/w5xj6|last1=Nunn |first1=Jack S. |last2=Shafee |first2=Thomas|journal=Research Involvement and Engagement |year=2022 |volume=8 |issue=1 |page=31 |pmid=35854364 |pmc=9294764 |s2cid=242248848|doi-access=free}}</ref><ref>{{Cite web|date=2021-09-16|title=Beta - Science For All|url=https://scienceforall.world/stardit/beta/|access-date=2021-09-16|archive-url=https://web.archive.org/web/20210916041629/https://scienceforall.world/stardit/beta/|archive-date=2021-09-16}}</ref><ref>{{Cite journal|last1=Nunn|first1=Jack|last2=Shafee|first2=Thomas|last3=Chang |first3=Steven |last4=Stephens |first4=Richard |last5=ElliotElliott |first5=Jim |last6=Oliver |first6=Sandy |last7=John |first7=Denny |last8=Smith |first8=Maureen |last9=Orr |first9=Neil |last10=Preston |first10=Jennifer |last11=Borthwick |first11=Josephine |date=20212022-1107-0219 |title=Standardised Datadata on Initiatives – STARDITinitiatives—STARDIT: Beta Versionversion |urljournal=https://www.researchsquare.com/article/rs-934285/v1Research Involvement and Engagement |volume=8 |issue=1 |pages=31 |doi=10.212031186/rs.3.rss40900-022-00363-934285/v19 |s2cidpmid=24420092835854364 |hdlissn=11250/30209502056-7529 |hdlpmc=9294764 |doi-access=free }}</ref> CARE principles were the basis of a submission to the UN's Global Digital Compact.<ref>{{Citecite journalweb |last1=NunnFaculty |first1=Jackof S.Environment |last2title=ShafeeAccelerating |first2=Thomasaction |last3=Changon |first3=Steventhe |last4=Stephensdigital |first4=Richarddivide |last5url=Elliotthttps://uwaterloo.ca/news/environment/accelerating-action-digital-divide |first5website=JimWaterloo |last6=OliverNews |first6date=Sandy8 June 2023 |last7publisher=JohnUniversity of Waterloo |first7access-date=Denny22 |last8February 2024}}</ref><ref name=Smith"gnc">{{cite book |first8last1=MaureenLeonard |last9first1=OrrKelsey |first9last2=NeilRusso |last10first2=PrestonStephanie |first10last3=JenniferMartinez |last11first3=BorthwickAndrew |first11last4=JosephineMcElroy |datefirst4=2022-07-19Lauren |title=StandardisedCARE dataPrinciples onfor initiatives—STARDIT:Indigenous BetaData versionSovereignty |journaldate=ResearchApril Involvement and Engagement2023 |volumeurl=8 |issue=1 |pages=31 |doi=10https://www.1186un.org/s40900techenvoy/global-022digital-00363-9 |pmid=35854364 |issn=2056-7529 |pmc=9294764 |doi-access=free compact/submissions}}</ref>

== See also ==

* [[FAIR data]]

* [[First Nations principles of OCAP]]

* [[Data sovereignty]]

* [[Indigenous data governance]]

== References ==