Draft:Single Patient Record


A single patient record (SPR) is a single medical record about a patient containing data from multiple sources. Governments in several countries are starting to create these records, and legislate for health care providers to release copies of the data they hold a patient into these systems.

European Union countries

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Countries in the European Union have traditionally opted for a sub-national, regional approach. For example:

  • Italy: Fascicolo Sanitario Elettronico (FSE), the Italian National PHR, was introduced from Art. 12 of Law Decree 18 Oct 2012 n. 179. Each region had to create and implement a PHR by June 20, 2015. The user interfaces, systems, and software must ensure full interoperability at regional, national, and European levels[1].
  • Sweden: the National Service Platform (NTjP) receives data from all medical records systems in each of the 21 regions[2].
  • Spain: has mandated sharing at regional level, such as Catalonia[3] and Andalucia[4].

Countries with small populations operate a single national record, including:

  • Cyprus: the national unified health data bank is expected to be completed by end of December 2025, following a parallel procurement process[5]
  • Estonia: Estonian Nationwide Health Information System’ (EHIS) is run by The Ministry of Social Affairs[6].
  • Hungary: the Human Resource Development Operating Programme focused on establishing the Electronic Health Service and Data Integration System (EESZT)[7].

EU nation states are starting to implement their compliance with the European Health Data Space (EHDS) legislation. The approach is a system-to-system copying of data between national systems, on demand by the needs of the patient, without consolidating into a single patient record.

England

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NHS England's 10-year plan[8] included the requirement for a Single Patient Record[9]. In May 2025 it released a Request for Information (RFI) notice to industry, showing NHSE's requirements[10].

The core vision for the SPR is to:

  1. Give patients visibility and control of their data, enabling them to read, write, share joint care plans and offer corrections to data - while also being able to manage sharing preferences and have access to an audit of who has viewed their record and for what purpose.
  2. Provide a single version of the truth by integrating data across settings, enabling patients, health care professionals and social care providers to work from the same record and to see key primary and secondary care NHS interactions, as well as autonomously prompt actions to occur.
  3. Enable the secure availability of data for third-party applications such as research and clinical trials (allowing for patient choice).

Nigeria

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Nigeria's federal government legislated that every state must procure and maintain an SPR. Lagos is the first state to complete procurement, choosing Interswitch[11] which partnered with Patients Know Best to deliver this.

Saudi Arabia

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Saudi Arabia's Council for Health Insurance and the National Health Information Center, in cooperation with the Ministry of Health, launched NPHIES platform to facilitate the exchange of health information for patients. The health information exchange has two component, NPHIES Taameen (insurance) and NPHIES Sehey [health] "a distinction that is believed to meet the necessary complexities of Saudi Arabia's healthcare system, which includes both public and private sectors"[12].

South Africa

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President Cyril Ramaphosa highlighted an SPR as a critical component for the country during South Africa's State of the Nation Address on 6 February[13]. At the moment the approach seems to be federate data from the regions using interoperability data standards.

Records from the public (across different provinces) and private (across several organisations) healthcare systems must be combined to provide a 360-degree view of the patient. This means that all the related systems need to be connected using agreed-upon data exchange standards, also referred to as “interoperability standards”. The Federated Health Information Architecture proposed by the Department of Health must therefore reflect these linkages even if this is done at a high level.

Technology providers

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  • Patients Know Best (PKB) already operates an SPR for its customers in different regions. In 2024 it won the contract to deliver an SPR for Lagos State in Nigeria, with a population over 20 million.[14]
  • Orion Health provides the single patient record of eight million patients for the Kingdom of Saudi Arabia, on a platform called NPHIES.[15]

References

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  1. ^ Posteraro, N. (December 2021). "La digitalizzazione della sanità in Italia: uno sguardo al Fascicolo Sanitario Elettronico (anche alla luce del PNRR)". IRIS Institutional Research Information System - AIR Archivio Istituzionale della Ricerca. Cineca. Retrieved 19 August 2025.
  2. ^ "Nationell digital infrastruktur för hälso- och sjukvård". E‑hälsomyndigheten. Swedish E-Health Authority. Retrieved 19 August 2025.
  3. ^ "La Meva Salut". La Meva Salut. Departament de Salut. Retrieved 19 August 2025.
  4. ^ "DIRAYA" (PDF). Junta de Andalucia. Retrieved 19 August 2025.
  5. ^ "Έρχεται MobileApp με το ιατρικό μας ιστορικό – Ενδιαφέρον από 46 εταιρείες για την τράπεζα αποθήκευσης ηλεκτρονικών φακέλων". philenews. 27 June 2025. Retrieved 19 August 2025.
  6. ^ "e-Health". e-Estonia. Estonian Business and Innovation Agency. 24 June 2024. Retrieved 19 August 2025.
  7. ^ "THE HISTORY OF THE EESZT". EESZT Information portal. EESZT. Retrieved 19 August 2025.
  8. ^ "Fit for the Future: 10 Year Health Plan for England". NHS England. Retrieved 19 August 2025.
  9. ^ "The Single Patient Record". NHS England. Retrieved 19 August 2025.
  10. ^ "Single Patient Record RFI Home". Single Patient Record. NHS England. Retrieved 19 August 2025.
  11. ^ "LAGOS STATE GOVERNMENT SIGNS CONCESSION WITH INTERSWITCH FOR LAGOS SMART HEALTH INFORMATION PLATFORM (LAGSHIP) DEVELOPMENT". Interswitch Group. Retrieved 19 August 2025.
  12. ^ "Exploring NPHIES - Saudi Arabia's Health Information Exchange". Solver ERP blog. Solver ERP. Retrieved 19 August 2025.
  13. ^ "Working towards a single electronic health record for SA". ITWeb. ITWeb Limited. 15 April 2025. Retrieved 19 August 2025.
  14. ^ HTN Health Tech News 2025 Patients Know Best wins single patient record contract for Lagos Retrieved 19 August 2025
  15. ^ Abdul-Hameed, M 2025 The NPHIES Platform: Transforming Saudi Arabia’s Health Insurance System Retrieved 19 August 2025